Patient-completed online "follow-up form" to assess continuation of anti-CGRP(r) antibody therapy in patients with chronic migraine: a pilot study
Stuart, Sarah Gregg, Stephanie Ware, Sally Koonalintip, Prut Wakerley, Benjamin R
Stuart, Sarah
Gregg, Stephanie
Ware, Sally
Koonalintip, Prut
Wakerley, Benjamin R
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Affiliation
University Hospitals Birmingham NHS Foundation Trust; Prince of Songkla University; University of Birmingham
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Publication date
2024-10-24
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Abstract
Background: The introduction of new drugs that target the Calcitonin Gene-Related Peptide (CGRP) system has provided significant hope for patients with otherwise treatment-resistant migraine, but also resulted in significant capacity issues at the point of delivery, as patients require follow-up at certain timepoints.
Aim: Pilot a patient-completed "follow-up form" (FuF) to replace direct patient contact at the time of 1-year treatment review in patients receiving anti-CGRP (receptor (r)) antibody therapy for chronic migraine.
Methods: Patients with chronic migraine already receiving anti-CGRP(r) antibody therapy and due for 1-year review were contacted by telephone and recruited into the study. Patients completed a simple online form, which mirrored questions asked at 1-year follow-up, and a patient satisfaction survey.
Results: Thirty-nine (78 %) of 50 patients completed the FuF, which resulted in further telephone contact in 3 (8 %) patients. Over 90 % strongly agreed that the FuF was easy to understand and complete. 80 % strongly agreed that they felt confident in decision making regarding continuation or cessation of anti-CGRP(r) antibody therapy. Overall, 88 % rated their experience of the online form as "Excellent" and 12 % as "Good".
Conclusions: Within our headache service, we have demonstrated that an appropriately designed online patient-completed form has the potential to replace direct patient contact at 1-year review in patients already receiving anti-CGRP(r) antibody therapy for chronic migraine.
Citation
Stuart S, Gregg S, Ware S, Koonalintip P, Wakerley BR. Patient-completed online "follow-up form" to assess continuation of anti-CGRP(r) antibody therapy in patients with chronic migraine: A pilot project. Clin Neurol Neurosurg. 2024 Dec;247:108594. doi: 10.1016/j.clineuro.2024.108594. Epub 2024 Oct 24.
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Article