The National audit of primary biliary cholangitis (PBC) in the United Kingdom: defining the audit dataset and data collection system.
Burke, Laura Flack, Steve Jones, Rebecca Aspinall, Richard J Thorburn, Douglas Jones, David E Braniff, Conor Thain, Collette Yeoman, Andrew Leithead, Joanna A
Burke, Laura
Flack, Steve
Jones, Rebecca
Aspinall, Richard J
Thorburn, Douglas
Jones, David E
Braniff, Conor
Thain, Collette
Yeoman, Andrew
Leithead, Joanna A
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2022-06-02
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Abstract
Primary biliary cholangitis (PBC) is a debilitating chronic liver disease that progresses to cirrhosis with attendant complications in a substantial proportion of patients. It is a major cause of liver-related morbidity and mortality in the United Kingdom (UK). The British Society of Gastroenterology (BSG) published guidelines on PBC management, which included key audit standards. Therefore, we propose the first UK-wide audit of the management of PBC, sanctioned by the BSG and the British Association for Study of the Liver (BASL), to benchmark NHS trusts and health boards against these audit standards as a guide to targeted improvement in the delivery of PBC-related health care.
Citation
Burke L, Flack S, Jones R, Aspinall RJ, Thorburn D, Jones DE, Braniff C, Thain C, Yeoman A, Leithead JA, Trivedi PJ, Mells G, Alrubaiy L. The National Audit of Primary Biliary Cholangitis (PBC) in the United Kingdom: Defining the Audit Dataset and Data Collection System. Cureus. 2022 Jun 2;14(6):e25609. doi: 10.7759/cureus.25609
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