Digital papillary adenocarcinoma
Haines, Adrian Cooke, Abigail Tso, Simon
Haines, Adrian
Cooke, Abigail
Tso, Simon
Affiliation
South Warwickshire University NHS Foundation Trust
Other Contributors
Publication date
2025-02-25
Subject
Collections
Research Projects
Organizational Units
Journal Issue
Abstract
Extract: Patient viewpoint
My name is Adrian and I want to share my journey as I would like to reach out to others who may be living with this rare and under-researched cancer. At times, my family and I have felt very isolated and lonely on our journey. This is due to a lack of scientific information about the prognosis and therapeutic options, and patient support groups specific to this rare cancer. Sharing my experience and reaching out to others is part of my coping strategy, as sometimes it feels like my life is ‘put on hold’ when a new growth or spread is discovered.
My story starts around 2005 when I had a slow-growing lump on my right thumb. It was not particularly uncomfortable although over time it did start to look unsightly and was becoming more noticeable. Eventually the lump was removed and I was informed that the biopsy result showed that it was ‘borderline cancerous’. As it was borderline, no further follow-ups or tests were arranged and I continued on with my life.
Citation
Haines A, Cooke A, Tso S. Digital Papillary Adenocarcinoma. Clin Exp Dermatol. 2025 Feb 25:llaf092. doi: 10.1093/ced/llaf092. Epub ahead of print.
Type
Article