Prevalence of leakage and its negative impact on quality of life in people living with a stoma in the UK.
Osborne, Wendy White, Maddie Aibibula, Miriayi Boisen, Esben Bo Ainsworth, Rachel Vestergaard, Martin
Osborne, Wendy
White, Maddie
Aibibula, Miriayi
Boisen, Esben Bo
Ainsworth, Rachel
Vestergaard, Martin
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2022-09-08
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Abstract
Background: People with a stoma are reported to experience leakage, which negatively impacts patient quality of life (QoL).
Aim: To assess the impact of leakage experienced by individuals with a stoma in the UK.
Methods: Data were analysed from 301 patients living in the UK who completed a questionnaire concerning the physical and psychosocial impact of living with a stoma.
Findings: Most respondents had had their stoma for more than 5 years. Nine out of 10 worried about leakage to varying degrees and half the respondents accepted that this was a worry they had to live with. Almost 70% experienced leakage onto clothes within the preceding year, and 28% experienced this monthly. Peristomal skin complications were experienced by 82% of respondents, the severity of which correlated with reductions in QoL.
Conclusion: Despite the consequential negative impact of leakage on QoL, individuals are not seeking advice to resolve leakage-related issues, including from their specialist stoma care nurse.
Citation
Osborne W, White M, Aibibula M, Boisen EB, Ainsworth R, Vestergaard M. Prevalence of leakage and its negative impact on quality of life in people living with a stoma in the UK. Br J Nurs. 2022 Sep 8;31(16):S24-S38. doi: 10.12968/bjon.2022.31.16.S24
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