Digital health and self-management in idiopathic inflammatory myopathies: a missed opportunity?
Battista, Simone Giardulli, Benedetto Sieiro Santos, Cristiana Aharonov, Or Puttaswamy, Darshan Russell, Anne -Marie Gupta, Latika
Battista, Simone
Giardulli, Benedetto
Sieiro Santos, Cristiana
Aharonov, Or
Puttaswamy, Darshan
Russell, Anne -Marie
Gupta, Latika
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2024-08-08
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Abstract
Purpose of review: This paper explored the potential of digital health in idiopathic inflammatory myopathies (IIMs), with a focus on self-management. Digital self-management technology includes tailored treatment plans, symptom tracking, educational resources, enhanced communication, and support for long-term planning.
Recent findings: After arguing the importance of digital health in IIMs management, from diagnosis until treatment, our literature review revealed a notable gap in research focusing on the efficacy of digital self-management interventions for individuals with IIMs, with no randomised controlled trials or observational studies addressing this topic. Our review further highlighted the significant unmet need for research in self-management interventions for individuals with IIMs. The absence of studies underscores the necessity for collaborative efforts to address this gap and develop personalised, effective strategies for managing IIMs using digital technology. Individuals with IIMs deserve tailored self-management approaches akin to those available for other rheumatic and musculoskeletal diseases.
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Battista S, Giardulli B, Sieiro Santos C, Aharonov O, Puttaswamy D, Russell A-, Gupta L. Digital Health and Self-Management in Idiopathic Inflammatory Myopathies: A Missed Opportunity? Curr Rheumatol Rep. 2024 Aug 8. doi: 10.1007/s11926-024-01157-6.
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