Living with a diagnosis of behavioural-variant frontotemporal dementia: the person's experience
Griffin, Julie Oyebode, Jan R Allen, Joanne
Griffin, Julie
Oyebode, Jan R
Allen, Joanne
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Affiliation
Black Country Partnership NHS Foundation Trust, Penn Hospital, Wolverhampton, UK; Facility of Health Studies, University of Bradford, Bradford, UK.
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Publication date
2015-02-02
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Abstract
Research investigating behavioural-variant frontotemporal dementia has concentrated on identifying and quantifying people's difficulties; yet few studies have considered how people with behavioural-variant frontotemporal dementia make sense of their difficulties. Five participants were interviewed and interpretive phenomenological analysis used to analyse the data. Two superordinate themes emerged: 'Bewilderment' and 'Relationships with others'. 'Bewilderment' reflected the feelings of the participants from the start of their dementia, and was divided into two main themes (1) 'Awareness of change: What's the problem? and (2) Threats to self: This is not me. The superordinate theme, 'Relationships with others', reflected difficulties with social relationships and comprised two main themes (1) 'Family and friends: Things haven't changed… but do I say anything wrong?' and (2) Coping with threats to self: Blame others or just avoid them. The themes were discussed in relation to literature evaluating the difficulties associated with behavioural-variant frontotemporal dementia together with implications for clinical practice.
Citation
Griffin J, Oyebode JR, Allen J. Living with a diagnosis of behavioural-variant frontotemporal dementia: The person's experience. Dementia (London). 2016 Nov;15(6):1622-1642. doi: 10.1177/1471301214568164. Epub 2015 Feb 2. PMID: 25645139.
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Article