The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period
Kroese, Biza Stenfert Patel, Varsha Cooper, Vivien Hiles, Steve
Kroese, Biza Stenfert
Patel, Varsha
Cooper, Vivien
Hiles, Steve
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Affiliation
Kent and Medway NHS and Social Care Partnership Trust; University College London; Hertfordshire Partnership University NHS Foundation Trust; University of Birmingham; Birmingham Community Healthcare NHS Foundation Trust; Tizard Centre, University of Kent; Challenging Behaviour Foundation, Chatham, UK; University of Warwick; Coventry and Warwickshire Partnership NHS Trust; Swansea University
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Publication date
2021-03-23
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Collections
Research Projects
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Abstract
Background
Recent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers.
Aim
The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period.
Methods
Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis.
Results
Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future.
Conclusions
All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.
Citation
Rogers, G., Perez-Olivas, G., Stenfert Kroese, B., Patel, V., Murphy, G., Rose, J., Cooper, V., Langdon, P. E., Hiles, S., Clifford, C., & Willner, P. (2021). The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period. Journal of Applied Research in Intellectual Disabilities, 34(6), 1421–1430. https://doi.org/10.1111/jar.12884
Type
Article