The experiences of mothers of children and young people with intellectual disabilities during the first COVID-19 lockdown period
Author
Rogers, Gemmaperez-olivas, gisela
Kroese, Biza Stenfert
Patel, Varsha
Murphy, Glynis
Rose, John
Cooper, Vivien
Langdon, Peter
Hiles, Steve
Clifford, Clair
Willner, Paul
Affiliation
Kent and Medway NHS and Social Care Partnership Trust; University College London; Hertfordshire Partnership University NHS Foundation Trust; University of Birmingham; Birmingham Community Healthcare NHS Foundation Trust; Tizard Centre, University of Kent; Challenging Behaviour Foundation, Chatham, UK; University of Warwick; Coventry and Warwickshire Partnership NHS Trust; Swansea UniversityPublication date
2021-03-23Subject
Mental health
Metadata
Show full item recordAbstract
Background Recent COVID-19 lockdown restrictions resulted in reduced access to educational, professional and social support systems for children with intellectual disabilities and their carers. Aim The aim of this study was to gain insight into the ways mothers of children with intellectual disabilities coped during the first 2020 lockdown period. Methods Eight mothers of children with intellectual disabilities were interviewed. The recordings of these interviews were subjected to a thematic analysis. Results Three main themes were identified: carrying the burden; a time of stress; and embracing change and looking to the future. Conclusions All mothers experienced increased burden and stress. However, some also described some positive impact of lockdown conditions on them as well as on their child's well-being and behaviour. These findings are discussed in the light of the (Journal of Applied Research in Intellectual Disabilities, 33, 2020, 1523) survey results on parental coping and suggestions for future service provision during pandemic conditions are proposed.Citation
Rogers, G., Perez-Olivas, G., Stenfert Kroese, B., Patel, V., Murphy, G., Rose, J., Cooper, V., Langdon, P. E., Hiles, S., Clifford, C., & Willner, P. (2021). The experiences of mothers of children and young people with intellectual disabilities during the first COVID‐19 lockdown period. Journal of Applied Research in Intellectual Disabilities, 34(6), 1421–1430. https://doi.org/10.1111/jar.12884Type
ArticleAdditional Links
https://onlinelibrary.wiley.com/doi/10.1111/jar.12884PMID
33759291Publisher
Wileyae974a485f413a2113503eed53cd6c53
10.1111/jar.12884