Reducing the gap in knowledge and expectations between clinicians and people with polycystic ovary syndrome or adrenal conditions: simulation via instant messaging-Birmingham Advance: patient and public involvement (SIMBA-PPI) study
Author
Melson, EkaRezai, Fatema
Pan, Carina
Ng, Sung Yat
Ogiliev, Tamzin
Blendis, Ella
Sheikh, Haaziq
Kaur, Harjeet
Cooper, Catherine
Abdelhameed, Farah
Pang, Francesca
Bhatt, Shreya
Shabbir, Dania
Olateju, Zahra
Radcliffe, Eloise
Balendran, Prashanthan
Radcliffe, Abby
Lau, Gar Mun
Davitadze, Meri
Zhou, Dengyi
Malhotra, Kashish
Gillett, Caroline
Kempegowda, Punith
Affiliation
Imperial College London; University of Birmingham; University of Lancaster; Walsall Manor Hospital; Queen Charlotte's and Chelsea Hospital; University of Warwick; Jinnah Medical and Dental College; Clinic NeoLab; Northwick Park Hospital, London North West University Healthcare NHS Trust; Rama Medical College Hospital; Queen Elizabeth Hospital Birmingham, University Hospitals NHS Foundation TrustPublication date
2024-07-22
Metadata
Show full item recordAbstract
Background: To evaluate the efficacy of SIMBA as an educational intervention for both HCPs and people with either PCOS or adrenal conditions and to study the change in knowledge of people with PCOS or adrenal conditions about the conditions and expectations from the HCPs involved in their care following SIMBA-PPI sessions. Methods: Two SIMBA-PPI sessions (SIMBA-PPI Polycystic ovary syndrome (SIMBA-PCOS) and SIMBA-PPI Adrenal conditions (SIMBA-Adrenal conditions)) were conducted in September 2021 and March 2022. In both sessions, HCPs interacted with moderators on patient management through WhatsApp. Patients with respective conditions underwent workshop-style learning in the same cases. SIMBA-PCOS transcripts were also translated into Brazilian Portuguese and workshops were held in both Brazilian Portuguese and English. The two groups (HCPs and patients) were then brought together to discuss exploring gaps in knowledge and expectations. The Wilcoxon Signed-Rank test compared differences in pre- and post-SIMBA self-reported confidence levels in HCPs and patients. Qualitative data from the online recordings were transcribed and analysed with inductive thematic analysis to identify gaps in knowledge and expectations from managing the cases. Results: 48 HCPs and 25 patients participated in our study. When compared to pre-SIMBA confidence levels, SIMBA-PPI sessions effectively improved clinicians' confidence in managing PCOS (40.5%, p < .001) and adrenal conditions (23.0%, p < .001) post-SIMBA. Patient participants' confidence in HCPs significantly increased in the PCOS session (SIMBA-PCOS: 6.25%, p = 0.01). Conclusions: Integration of PPI into SIMBA improved HCPs' confidence in managing PCOS and adrenal conditions. SIMBA-PPI also improved patients' confidence in HCPs. Our findings suggest that participating in SIMBA-PPI sessions can reduce the gap in knowledge and expectations between patients and HCPs involved in their care.Citation
Melson E, Rezai F, Pan C, Ng SY, Ogiliev T, Blendis E, Sheikh H, Kaur H, Cooper C, Abdelhameed F, Pang F, Bhatt S, Shabbir D, Olateju Z, Radcliffe E, Balendran P, Radcliffe A, Lau GM, Davitadze M, Zhou D, Malhotra K, Gillett C; SIMBA and CoMICs team; Kempegowda P. Reducing the Gap in Knowledge and Expectations between Clinicians and People with Polycystic Ovary Syndrome or Adrenal Conditions: Simulation via Instant Messaging-Birmingham Advance: Patient and Public Involvement (SIMBA-PPI) Study. BMC Med Educ. 2024 Jul 22;24(1):784. doi: 10.1186/s12909-024-05772-w.Type
ArticleAdditional Links
https://bmcmededuc.biomedcentral.com/PMID
39039479Journal
BMC Medical EducationPublisher
BioMed Centralae974a485f413a2113503eed53cd6c53
10.1186/s12909-024-05772-w