Patient reported outcome assessment must be inclusive and equitable

Calvert, Melanie J; Cruz Rivera, Samantha; Retzer, Ameeta; Hughes, Sarah E; Campbell, Lisa; Molony-Oates, Barbara; Aiyegbusi, Olalekan Lee; Stover, Angela M; Wilson, Roger; McMullan, Christel; Anderson, Nicola E; Turner, Grace M; Davies, Elin Haf; Verdi, Rav; Velikova, Galina; Kamudoni, Paul; Muslim, Syed; Gheorghe, Adrian; O'Connor, Daniel; Liu, Xiaoxuan; Wu, Albert W; Denniston, Alastair K

Affiliation

University of Birmingham; National Institute for Health Research (NIHR); Health Data Research UK; Medicines and Healthcare products Regulatory Agency (MHRA); Health Research Authority; University of North Carolina at Chapel Hill; NCRI Consumer Forum National Cancer Research Institute; Health Research Authority Patient Involvement Network; Aparito Limited; University of Leeds; Healthcare Business of Merck KGaA; Imperial College London; University Hospitals Birmingham NHS Foundation Trust; John Hopkins Bloomberg School of Public Health; Institute of Ophthalmology

Publication date

2022-05-05

Subject

Patients. Primary care. Medical profession. Forensic medicine
Sociology
Public health. Health statistics. Occupational health. Health education

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Abstract

Patient-reported outcomes are increasingly collected in clinical trials and in routine clinical practice, but strategies must be taken to include underserved groups to avoid increasing health disparities.

Citation

Calvert MJ, Cruz Rivera S, Retzer A, Hughes SE, Campbell L, Molony-Oates B, Aiyegbusi OL, Stover AM, Wilson R, McMullan C, Anderson NE, Turner GM, Davies EH, Verdi R, Velikova G, Kamudoni P, Muslim S, Gheorghe A, O'Connor D, Liu X, Wu AW, Denniston AK. Patient reported outcome assessment must be inclusive and equitable. Nat Med. 2022 Jun;28(6):1120-1124. doi: 10.1038/s41591-022-01781-8.

Type

Article